Bedtime Routines for a Restful Night

Blog: Bedtime Routines 2024

With the school year in full swing, perhaps you’ve already got your kids on a bedtime routine that’s working like a fine-tuned machine. But if you’re like  many of us, you may need a tune-up. If so, fear not. Here are some tips to put sleep issues to bed, once and for all.

1. Say goodnight to electronics
The blue light emitted by electronic screens inhibits the release of melatonin, a hormone that regulates sleepiness. So, be sure to turn off electronics including TVs, smartphones, iPads, computers and gaming consoles at least one hour before bedtime. This will allow your child to wind down instead of being overstimulated.

2. Keep bedroom dark
You can also avoid night-time light by using black-out shades. If your child needs light to allay fears or to find her way to the bathroom, get her a nightlight.

3. Keep room temperature comfortable
According to the Sleep Foundation, room temperature “can make a significant difference to your sleep quality.”  The perfect temperature for sleep? Between 65 and 68 degrees.

4. Use sensory-friendly linens
If your child is sensitive to labels, stitching or scratchy fabrics in his clothes, the same goes for sheets and comforter textures. Look for soft bedding like bamboo or sateen fabrics that won’t irritate sensitive skin. If your child needs extra help to calm down, a weighted blanket may be the perfect remedy.

5. Keep room uncluttered
If you’re lucky enough to have a playroom in your home, keep the majority of toys in there. If not, put toys in bins or closets prior to bedtime. According to the website Dreams.co, clutter “triggers more excitatory sensory input, slowing the body’s transition to relaxation and sleep. A clean space has a decidedly calming effect, helping your child ease into sleepiness.”

6. Stick to a routine
The more carefully you follow your child’s bedtime routine, the more likely that bedtime will become a pleasant parent-child routine, and not a battleground. Consider creating a visual schedule that you and your child can follow.  A typical schedule might include toy clean-up after dinner followed by bath-time, PJs, book, and tuck-in and good night at 8 p.m. For best results, maintain your schedule even on weekends.

New Rule Reinforces Section 504 Protections

Blog: New Rule Reinforces Section 504 Protections

In previous blogs, we’ve talked about how doctors and medical practitioners aren’t always able or willing to treat people with disabilities—mainly because they don’t know how to accommodate them.

(If you haven’t read anything about this phenomenon, we recommend reading an Oct. 2022 article in The New York Times headlined “These Doctors Admit They Don’t Want Patients with Disabilities.” It reveals shocking details about the ways in which doctors avoid treating patients with disabilities.)

The times they might be changing, though.

Recently, the Office of Civil Rights (OCR) of the United States Health and Human Services (HHS) took an important step toward addressing inequities and discrimination in health care. On May 1, the agency finalized a new rule, known as the “Discrimination on the Basis of Disability in Health and Human Service Programs or Activities” which fortifies Section 504 of the Rehabilitation Act.

The new rule, which applies to any program or activity that is funded by HHS, prevents medical doctors and other healthcare or social servicer practitioners from discriminating against patients in terms of their medical treatment, and demands that medical facilities have accessible equipment, websites and apps.

“This rule strengthens the protections afforded by Section 504, a landmark civil rights law, and furthers the Department’s commitment to ensuring equal access to this nation’s health care system and its social service programs for people with disabilities and their families,” said Secretary Xavier Becerra in a press release. “It is comprehensive in scope, advancing justice for people with disabilities and helping to ensure they are not discriminated against under any program or activity receiving funding from HHS just because they have a disability.”

Melanie Fontes Rainer, director of the HHS Office for Civil Rights called the rule “way overdue.”

“My office heard from thousands in overwhelming support of this rule and the need to update this rule now for people with disabilities. By removing barriers to health care and social services, this rule advances justice for people with disabilities who have for too long been subject to discrimination. No diagnosis should be missed because of an inaccessible mammogram, no patient should be left with questions about test results due to inaccessible websites, and no life should be valued less due to disability.”

Ease Into Sleep With Bedtime Routines

Bedtime Routines

Any parent knows that getting their kids to sleep can be a nightly struggle. In fact, a 2023 Penn State College of Medicine study found that “25% of children, 35% of adolescents and 45% of young adults suffer from insomnia symptoms.”

In children with intellectual and developmental disabilities, hearing impairment or deafness and visual impairment or blindness, the incidence of sleep disorders is even higher, with some studies finding that as many as 86% experience them.

Now that school is back in session, it’s more important than ever that children get a full night of good quality sleep. Here are some of the best ways to approach bedtime battles.

Establish a routine
Create a visual schedule for your nightly bedtime routine and share it with your child. A typical routine might be bath-time at 7 p.m. followed by pajamas, book, tuck-in and good night at 8 p.m. Stick to the schedule – even on weekends.

End electronics use early
Stop screen-time well before starting the bedtime routine. “Smartphones, tablets, computers, television screens, and some e-readers give off short-wavelength blue light that is very similar to sunlight,” according to sleepfoundation.com. “Not only does this light make people more alert, it also deceives the body into thinking it is still daytime.” It goes without saying—that’s the last thing we want at bedtime!

Make the bedroom conducive for sleep
Your child’s bedroom should be cool and dark with comfortable, soft bedding that doesn’t irritate sensitive children’s skin. Put toys away so they don’t present distractions. If your child needs some light to feel comfortable, use a nightlight. Tools such as white noise machines and weighted blankets may also encourage relaxation and sleep.

Choose bedtime snacks carefully
If your child wants a snack before bed, stick to foods and beverages without sugar or caffeine. Good bedtime snack choices include nut butter on whole wheat bread, banana, plain yogurt, apple slices and cheese.

Ask your pediatrician about melatonin
Only with your doctor’s approval, consider giving your child melatonin about 60 to 90 minutes before bedtime. According to healthychildren.com, “melatonin is a natural, hormone-like substance produced by an area in the brain called the pineal gland. It is released naturally at night and tells the body it’s time to sleep.” Discuss dosage amounts with your pediatrician before starting any supplement use.

Teach relaxation techniques
Some children respond positively to massage or relaxation exercises such as these from the Sleep Foundation. Relaxation exercises help children to calm their bodies and minds so they can drift off to sleep more easily.

Have a busy day
Encourage your child to spend as much time engaged in active, outdoor activities as possible during the day. That way, they’ll be more likely to fall asleep at night.

 

Adaptive Biking Guide

Blog: Adaptive Bikes 2023

Biking is a wonderful way to improve health and fitness, an environmentally sustainable means of transportation and a beautiful way to enjoy the great outdoors. Adaptive bicycling enables bikers of varying abilities to reap all these benefits.

According to the folks at bike designer and manufacturer RAD Innovations, “adaptive cycles are bikes that are modified to fit the needs of an individual rider. We all have different abilities and challenges, and there are a wide variety of ways that a bicycle or tricycle can be modified to make cycling possible (and fun!) for anyone.”

With that said, here are some of the most popular types of adaptive cycles:

Hand Cycles
Hand cycling is the way to go for individuals with lower limb mobility challenges. “They can be as simple as a clip-on front wheel and hand-propelled drivetrain, which attaches to your everyday wheelchair or a separate handcycle,” according BikeRadar, an expert on all things bicycle. Since arms aren’t as strong as legs, BikeRadar advises hand cyclers to make sure their setup includes the appropriate wheel size and gear ratios. It’s also important to choose a seat type and position that provides the right kind of trunk support and pedal height for your body. Recumbent hand cycles sit higher than other types of hand cycles which makes it easier to transfer on and off.

Adult Tricycles
Adult trikes aren’t just for people with disabilities, though neurodiverse individuals may prefer the comfort and stability that a trike provides riders. Adult trikes come in two types: delta trikes, which are designed with one wheel in front and two in the back and are the most popular choice; and tadpole trikes, with two wheels in front. Many prefer tadpole trikes as they feel they are generally more stable and easier to handle. Tadpoles are also recommended for people with visual impairments.

Tandem Bicycles
Tandem bikes are built to accommodate two riders at once. Most of these are designed for one rider in front and one in back: the “captain” in front who controls steering, and the “stoker” in back who helps with the pedaling.  But there are also tandem bikes that seat riders side by side, and tandems where the person who steers sits in the back and the pedaling helper sits up front. If balance is a concern, tandem bikes also come with back tricycle wheels. These bikes are ideal for people with visual or cognitive impairment.

Recumbent Bicycles
These bikes are appropriate for anyone who feels more comfortable riding in the recumbent position. They are especially popular with neurodiverse individuals and those with back and balance issues.

E-Bikes
In recent years, e-bikes (or electric bikes) have become an excellent option for those who lack the strength and staying power to rely strictly on their own pedal power.

Anyone who has investigated purchasing an adaptive bicycle knows they can be quite expensive. Depending on which type of bike you purchase, adaptive cycles can run anywhere from a few hundred dollars to many thousands of dollars. If that’s not in your budget, don’t despair. With a bit of research, you may be able to find more affordable options. For example, adaptive sports organizations in your area may run adaptive biking groups where bikes are available for loan, rent or a reasonable membership fee. Adaptive bike rentals are also available at some parks bike trails, bike stores, or through city bike sharing programs. Some nonprofits such as Charlie’s Champs, and the Adaptive Cycling Foundation and Cycling Without Age also supply adapted bicycles for riders with disabilities. 

Five Alternative Therapies to Consider in 2023

PT Massaging Girl's Face

Modern medicine is a marvel, but there are times when we may choose to supplement science with holistic remedies and wellness rituals.

If you’re looking to change up your self-care regimen in 2023, here are some time-tested complementary medicine practices to keep you feeling your best in the coming year. Note: Please check with your healthcare provider before trying any non-traditional therapies. In addition, make sure that your alternative health provider is well-trained and experienced.

1. Adapted Yoga
When we think about yoga, we might imagine someone balancing on their head, performing a back bend, or twisted into a pretzel. But poses such as these are just the tip of the iceberg. As Carol Krucoff, a certified yoga therapist at Duke Integrative Medicine to WebMD, “You don’t have to be athletic, or even very mobile, to benefit. ‘If you can breathe, you can practice yoga.’”

In adapted yoga, the practice is adapted for the individual, whether a person is blind, developmentally disabled or unable to move their limbs. “Yoga is a journey inward to connect with your deepest, truest self,” says Krucoff. “Poses are a very important part of the practice, but they’re only one piece of the practice. It’s not just what you do in a yoga practice, but how you do it that matters.”

2. Massage
Massage sounds luxurious, but when one suffers from pain, stiffness and spasticity as a result of a disability such as cerebral palsy, Parkinson’s syndrome or multiple sclerosis, it may be a necessity. According to Integrative Health.org, “Massage can significantly improve the pliability of muscle tissue, which results in less spasticity and improved muscle function, as well as improved flexibility and range of motion. This can often be the difference between being able to walk or not for someone who is suffering with one of these debilitating conditions.”

Likewise, people who spend most of their time in their wheelchairs may experience symptoms of atrophied muscle tone, skin rashes, muscle spasms and reduced circulation that can lead to cardiovascular illness. “Massage has been shown to increase circulation and improve lymphatic return, which is of great benefit for those who are unable to move all or part of the muscle tissue in their extremities. Those suffering from edema because of some condition or as a result of being wheelchair bound may see significant improvement after receiving lymphatic massage.”

Massage is also a valuable treatment for individuals with developmental disabilities such as Autism, Fetal Alcohol Syndrome, Attention-Deficit or ADHD. These individuals may find that massage relieves the anxiety, stress and depression that often accompanies these disabilities.

3. Craniosacral Therapy (a massage for your head)
In craniosacral therapy, a trained practitioner massages the scalp in a way that calms the craniosacral system, which safeguards the brain and spinal cord.  According to the Cleveland Clinic, craniosacral therapists claim the treatment “promotes a feeling of well-being by eliminating pain and boosting health and immunity.

4. Aromatherapy
Though it’s been around for thousands of years, it’s only relatively recently that aromatherapy has been used in the west.

According to healthline.com, “Aromatherapy is a holistic healing treatment that uses natural plant extracts to promote health and well-being.” Though more research is needed, practitioners and proponents say that aromatherapy oils taken through the nose (by diffuser, inhalers, bath salts, etc.) or through skin the (in the form of lotions, balms or clay masks) reduces joint pain, inflammation, peripheral neuropathy, anxiety and stress.

5. Acupuncture
Unlike some other alternative health treatments, acupuncture, which uses thin needles to stimulate specific particular points on the skin to reduce pain, is widely accepted by western medical professionals and insurance providers. Indeed, Ameridisability reports that acupuncture helps in the treatment of respiratory diseases; eye disorders; orthopedic disorders; gastrointestinal disorders; and neurologic disorders. Afraid of needles? Don’t worry; acupuncture rarely hurts.

New Study Finds Moms of Children with ASD Prone to Depression

Blog: Moms w/Depression new

Despite the joys it brings, the day-to-day grind of motherhood also brings a great deal of stress and anxiety. Mothering a child on the autism spectrum is especially challenging because children with ASD can exhibit difficult behaviors, such as tantrums and aggression. Additionally, mothers of children with ASD worry about their children’s development and their futures.

Perhaps not surprisingly, a  new study in the journal Family Process reveals that mothers of children with autism have higher rates of depression than mothers of typically developing children.

The study, “Is it Me or My Child? The Association Between Maternal Depression and Children’s Behavior Problems in Mothers and Their Children With or Without Autism” found that 50 percent of mothers with children on the autism spectrum had depressive symptoms, while only between 6 and 13.6 percent of mothers with typically developing children had symptoms of depression during the same time period.

Led by Danielle Roubinov of the University of California, San Francisco, the study took place over 18 months and included 86 mothers of children between 2 and 16 years old. Approximately half of the participants had children on the autism spectrum.

Mothers were assessed for depression using a tool called the Inventory of Depression Symptoms. They also completed the Child’s Challenging Behavior Scale. The two scales were used to determine whether mothers’ depressive symptoms correlated with their children’s behaviors and also looked at whether mothers’ depressions impacted their children’s behaviors.

Interestingly, the study found that “Child behavior predicted maternal depression, but the converse was not true, regardless of parenting stress levels or child’s ASD diagnosis.” Roubinov and her colleagues surmised that these findings might relieve guilt in mothers with autistic children who were concerned their depressive symptoms might negatively affect their children.

Relieving mothers’ guilt is of course, a good outcome. But it’s not enough. We’ve said it before, in previous blogposts, but it bears repeating. Caregiving is tremendously stressful to caregivers who can become vulnerable to mental and physical illness if they don’t practice good self-care.

Here’s a reminder of self-care practices that can relieve depressive symptoms:

Know the symptoms of depression
If you are experiencing persistent feelings of sadness, hopelessness, guilt or unworthiness; losing interest in activities that once gave you pleasure; if you observe changes in your sleep or appetite, you may be depressed.

Seek professional help
Don’t assume that depressive symptoms will just blow over and don’t succumb to stigma about mental illness. Remember that mental illness is a health issue requiring treatment, just like heart disease or diabetes. If you believe that you might be depressed, reach out to a mental health professional for consultation, therapy and/or medication.

Take time to destress and rejuvenate
You may feel as if you have no time to spare, but it’s imperative that you allow yourself to take breaks when your fuel tank is empty. Don’t be afraid to delegate some of your responsibilities to a spouse, friend or family member. Giving yourself an opportunity to rest will give you the energy to maintain an optimal level of caregiving.

Do something you love
Sometimes, caring for a child with challenges is so all encompassing that moms put aside everything that once gave them joy. Even if it’s just once a week, give yourself permission to be with friends, take a fitness class, get a mani-pedi, or have a date with your spouse or partner.

Don’t try to do everything
Many moms believe that they have to be perfect or super-human. There’s no need to attend every family event, volunteer for every school outing, or cook a gourmet meal every night. In short, give yourself a break! You deserve it.

GUIDE Beauty Brings Inclusiveness to Cosmetics Industry

Blog: Accessible Beauty

(Founder Terri Bryant and Chief Creative Officer Selma Blair)

 

“Beauty is not in the face; beauty is a light in the heart.” Khalil Gibran

We couldn’t agree more. And yet… it can be fun to experiment with cosmetics. GUIDE Beauty, a company that makes cosmetics specifically designed for individuals with fine motor and dexterity challenges, makes being Instagram-ready possible for anyone who wants to enhance their natural beauty.

GUIDE Beauty was founded in 2020 by celebrity makeup artist Terri Bryant. Bryant, who had been experiencing unexplained stiffness and deteriorating fine motor and finger dexterity for years, was finally diagnosed with Parkinson’s disease in her early 40s. The diagnosis changed her life and career path.

“As a professional makeup artist, I felt a natural ability that most of my friends, family, and clients did not share,” Bryant said in a press release. “When that ability shifted due to the onset of Parkinson’s Disease it became so clear that my needs, like so many, had not been considered in the design and development of the products I had always used, so I decided it was time to create them.”

Bryant reached out to clean chemists and product designers trained in universal design to come up with her own line of vegan, gluten free, cruelty-free cosmetics and makeup tools that would make cosmetic application accessible to individuals with fine motor and dexterity challenges. She also tested the products on hundreds of makeup users of all abilities to ensure that they were effective for as many people as possible. As it turned out, the new product designs, including a “patented GUIDE Ring to steady the hand and make application smooth and easy” worked better for everyone. “When we design with all people in mind, we create the best products for everyone,” says Bryant.

In spring 2022, actress, memoirist and multiple sclerosis advocate Selma Blair became GUIDE’s Chief Creative Officer and a partner in the business.  Blair, who went public with her multiple sclerosis diagnosis in 2018, was passionate about the company’s mission, and had the public profile needed to grow the line and take the company to the next level.

“When I first held the GUIDE Wand, I immediately felt more confident than I ever had with a traditional pencil liner and found myself looking forward to doing my own makeup for the first time in a long time,” said Blair… “Upon meeting Terri, we bonded instantly over our mutual love of makeup and its ability to transform a face and a day. I’m thrilled to join her and GUIDE to create and advocate for a more inclusive world of beauty.”

Currently GUIDE offers universally designed eye liner, mascara, eye shadow, brow liner, and a range of accessible makeup brushes and applicators. Check out GUIDE’s website for tutorials on how to apply all their products.

988 Will Benefit Individuals with Dual Diagnoses of Disability and Mental Illness

988 Suicide Crisis

In 2021, Vivek Murthy, the Surgeon General of the United States, issued an advisory about the mental health crisis among teens and young adults in the United States. She stressed that “even before the pandemic, an alarming number of young people struggled with feelings of helplessness, depression, and thoughts of suicide.”

Murthy’s advisory emphasized that the pandemic has been especially detrimental to youth with disabilities who were forced to cope with the inadequacies of online learning, day program closures, caregiver shortages, reduced socialization opportunities and more. COVID-19 also added to the already significant stressors of parents and family members of disabled youth.

But disabled youth and their families aren’t the only Americans with disabilities who faced increased mental health challenges before and after the pandemic. The Centers for Disease Control and Prevention (CDC) has reported that adults those living with disabilities are far more likely to experience mental health and substance abuse disorders than those without disabilities.

A new national hotline – 988 – which launched on July 16, may be one step toward mitigating some aspects of the crisis.

According to the U.S. Department of Health & Human Services’ Substance Abuse and Mental Health Services Administration (SAMHSA), the hotline, designated by Congress in 2020, “offers 24/7 call, text and chat access to trained crisis counselors who can help people experiencing suicidal, substance use, and/or mental health crisis, or any other kind of emotional distress. People can also dial 988 if they are worried about a loved one who may need crisis support.” The hotline will be “operated through the existing National Suicide Prevention Lifeline.”

SAMHSA considers 988 “a first step towards a transformed crisis care system in America.” SAMHSA and others in the mental health and addiction fields believe that 988 will be more effective than the National Suicide Prevention Lifeline because it offers more direct access to the Lifeline network and additional mental health and addiction resources. It differs from the services provided through 911, which typically sends police, fire fighters and EMS teams to crisis locations.

Previously the National Suicide Prevention Hotline had a long phone number that was hard to remember. Advocates of 988 believe that having a 3-digit phone number that’s easy to remember, will also make a difference.

Kim Musheno, vice president of public policy at the Autism Society of America recently told Disability Scoop, “[we] are optimistic that 988 will benefit people with autism and other developmental disabilities, many of whom have co-occurring mental health conditions.”

Musheno explained that when individuals with autism and their families are confronted with a mental health or behavioral crisis, they “often have nowhere to turn. This often results in a call to the police or taking the individual to a hospital. Neither is appropriate,” said Musheno, who hopes that call center staff at 988 will be better equipped to handle mental health crises. This is especially critical in the case of developmentally or intellectually disabled individuals who may have difficulty expressing their needs to people who don’t have specialized training.

Despite positive reactions to 988, many disabilities activists believe that much more needs to be done to improve behavioral health services for individuals with disabilities and concurrent mental health disorders. For one thing, they say that call center staff should receive mandated training in working specifically with individuals with intellectual and developmental disabilities. In addition, they are calling for better community supports for disabled citizens.

Medical Students Need to Learn More About Needs of IDD Patients

Doctor's Day

Bet you didn’t know that March 30 is World Doctor’s Day! Enabling Devices salutes doctors as well as nurses and other allied health professionals for all they do for us on a regular basis. Where would we be without them, especially during the pandemic?

Yet, it’s also worth considering how doctors could do a better job of caring for individuals with intellectual or developmental disabilities (IDD).

If you or your adult child lives with an (IDD), finding doctors who truly understand your concerns can sometimes be challenging. That’s because most medical students receive next to no training in treating individuals with intellectual and developmental disabilities.

According to the American Academy of Developmental Medicine (AADM), “those who pursue specialties in developmental medicine, [treating individuals with IDD] typically go into pediatrics. That’s not so surprising since, “for most of human history, the average life expectancy for people with IDD was less than 20 years,” says AADM. “Today, the life expectancy of a person with IDD is more than 60 years. The medical field, however, has not kept pace with this significant demographic shift.”

Clearly, this presents a major problem for IDD individuals when they grow into adults.

“The result of this [shortcoming in the medical field] has been high levels of unmet health needs, misdiagnosis, medical mismanagement, polypharmacy and avoidable medical expense,” finds AADM.

Since its inception in 2002, AADM has dedicated itself to improving the quality of healthcare for people with IDD. As such, the organization has spent years advocating for changes in medical school curriculums so that every future doctor has the skills they need to provide quality care to patients with IDD.

In 2009, AAMD founded The National Curriculum Initiative in Developmental Medicine (NCIDM), a program that aims to “define and integrate the concepts of developmental medicine into the medical school curriculum of every medical school in the United States.”

The initiative, led by Dr. Matt Holder, has the support of organizations and businesses including Special Olympics, Walmart Foundation, the Florida Developmental Disabilities Council, the North Carolina Mountain Area Health Education Center, the WITH Foundation and the Society for Teachers of Family Medicine. So far, these funding partners have raised almost $2,000,000. According to NCIDM, an additional $1,000,000 is needed to ensure that all medical schools follow its developmental medicine curriculum. AAMD data shows the investment would be well worth it. It is estimated that Medicaid stands to save between $2 billion and $8 billion dollars a year, if the curriculum is adopted.

Yet, the initiative has been met with resistance from the Liaison Committee on Medical Education, (LCME), a group cosponsored by the Association of American Medical Colleges and the American Medical Association. To date, only 10 % of medical schools have adopted the NCIDM curriculum. These include prestigious institutions such as Harvard Medical School, Baylor College of Medicine, University of Louisville School of Medicine, Albert Einstein School of Medicine, and Georgetown University.

Dr. Matt Holder, the doctor who heads up NCIDM, hopes that will soon change. “What we would hope to see is a long-term improvement in not only the ability of people with intellectual and developmental disabilities to access care, but an improvement in the quality of care,” he told Disability Scoop in 2019.

“We know, for example, that by changing attitudes and at least having a willingness to see this population and not being intimidated, you won’t turn people away, or you won’t make it uncomfortable for them in your office so they go away.”

Those steps, which are way overdue, would certainly be positive steps forward!

Stay tuned for updates about this important initiative.

Eight Adaptive Exercise Products to Get You in Shape for 2021

People on wheelchair exercising

‘Tis the season for New Year’s Resolutions and once again, getting in shape is at the top of many people’s resolution lists.

Staying physically fit is important for all of us, but especially for people with limited mobility who are susceptible to a variety of medical conditions.

According to the United States Department of Health and Human Services’ Agency for Healthcare Research and Quality, “individuals with limited mobility are at greater risk for obesity or increased body fat, diabetes, and dyslipidemia (among other chronic conditions), putting them at increased risk for cardiovascular events such as myocardial infarction, stroke, and death. Increased risk for morbidity and mortality may be due, in part, to the specific disease that limits mobility or leads to the use of a wheelchair, the treatment for the disease (e.g., steroids used to treat MS), and/or a sedentary lifestyle.”

Yet negative outcomes such as the ones referenced aren’t a foregone conclusion by any means.

On the contrary, there are many ways that wheelchair users can remain fit. One option is investing in adaptive exercise equipment designed specifically for wheelchair users. Here are some examples of adaptive equipment that can help you get in shape without leaving your home or your wheelchair. Remember—always check with your physician before beginning any exercise program!

1. Wheelchair Workout Kit
This kit contains everything you need to tone your muscles while sitting in your wheelchair. It includes five sets of progressive resistance tubes; two resistance tubes with handles and a combination hand/finger exerciser and a carrying case. Additionally, the kit comes with instructions for upper body and core exercises.

2. Thera-Band Progressive Resistance System
Strengthen your upper and lower body while increasing mobility, range of motion and coordination with these eight color-coded resistance bands that can be used while sitting in your wheelchair.

3. Pedal Exerciser for Lower and Upper Body
The Pedal Exerciser provides a cardiovascular and strengthening workout that’s just like riding a bicycle. Additionally, this product stimulates circulation, improves range of motion and increases muscle strength and coordination.

4. McLain Wheelchair Training Roller
This apparatus works like a treadmill to provide a great cardiovascular workout. At $1,050, the wheelchair training roller isn’t cheap, but it’s a wonderful tool for the serious athlete.

5. Thera-band Exercise Balls
Strengthen hands and fingers and increase flexibility and coordination with these five color-coded balls. Each ball comes with instructions for 24 exercises.

6. Bowling Ball Pusher
Bowl from your wheelchair with this ingenious device! Built out of steel and aluminum, the bowling ball pusher enables bowlers to push the bowling ball down the lane.

7. Grip Cuff
Designed for individuals with grasping disabilities, the grip cuff enables the wearer to grip weights or handlebars without pain or discomfort.

8. The Underwater Walker
If you have access to a swimming pool, the underwater walker is well worth the investment. This apparatus makes it possible for people with mobility limitations to walk independently in the pool.

Note: Enabling Devices has no relationship with the companies mentioned here and is not compensated for providing this information. The links here are for the reader’s convenience.

10 Ways to Keep Kids Busy During the COVID-19 Pandemic

COVID-19

As the United States braces for the full impact of the Coronavirus pandemic, most schools, day programs, and extracurricular activities have been cancelled for at least two weeks and probably longer. Keeping children busy during this time will be challenging for all parents. But when your child has a significant disability, the demands are even higher.

So, what’s a special needs parent to do? There’s no magic bullet. But we’ve come up with some suggestions for getting you and your children through this unprecedented health emergency.

Talk to your child
Depending upon your child’s developmental level, they have probably heard something about COVID-19. Explain the coronavirus in developmentally appropriate language and give your child the opportunity to ask questions. “Your goal is to avoid encouraging frightening fantasies,” says the Child Mind Institute. Also explain how this will impact your family. For example, mom and dad will be working from home; school will be cancelled or online, etc.

Maintain a routine
Children, especially those with autism and other developmental disabilities may find schedule changes and unstructured time anxiety-provoking. Develop a schedule that includes wake-up and bedtimes, mealtimes, outdoor activities, learning sessions and free play. Review the schedule every morning, using visual prompts if they are helpful to your child. A Day in Our Shoes.com has printable schedules that you can download and use at home.

Hire a mother’s helper or two
School’s out for everyone, so hire some tweens to come over and supervise your kids. Their parents will thank you! It’ll be a win-win-win!

Tell a story
Story-telling is a great way for parents and children to bond. It’s also a wonderful way for children to learn. But children can benefit from story-telling even when you’re working in another room. Choose some audiobooks and have story-time at least once a day.

Water-play
Give your kids a sensory treat and make your home more sanitary by setting up a toy-washing station complete with sponges, scrub brushes and bubbles. Consider purchasing one of Enabling Devices’ water toys or bubble toys, so that everyone can join the fun.

Get Outdoors
It’s hard to find bright spots when you’re experiencing a pandemic, but at least it’s arrived just in time for spring. Make sure to build outdoor-time into your family’s schedule. Note: If playgrounds are part of the plan, make sure to take hand sanitizer and wipes for the equipment.

Try an online exercise program
Regardless of your child’s intellectual or physical limitations, there’s probably an online exercise program that meets their needs. Check out YouTube video workouts from Kym Nonstop, Spark or Scope. You can also try a Yoga for Kids video from Gaia.

Make slime!
Everybody loves slime! Here’s a great recipe from The Best Ideas for Kids!

Institute game-time
Board games are not only fun, they teach many valuable skills. Enabling Devices sells many adapted games, so everyone can play.

Learn online
Don’t let kids fall too far behind in their studies. Scholastic Learn at Home just launched 20 days of free online learning activities for kids stuck at home due to the coronavirus. The lessons are geared to preschoolers to 6th grade and beyond.

Browse Sensory Products

Six Steps to Fitness in 2020

Two People in Wheelchairs Exercising in a Dance Studio

What’s the most common New Year’s resolution for 2020? You guessed it. Exercise more. That makes sense, since, along with a balanced diet and good medical care, exercise is one of the most important components of physical and mental health. Though physical fitness is just as important for people with disabilities as it is for others, the Centers for Disease Control and Prevention reports that “children and adults with mobility limitations and intellectual or learning disabilities are at greatest risk for obesity.” Obesity leads to other health problems including: cardiovascular disease and stroke, high blood pressure, diabetes, cancer, gallbladder disease, osteoarthritis and gout. So, the stakes couldn’t be higher.

Starting an exercise routine when you or your child has a disability can be challenging. So, we’ve put together some suggestions designed to help you get started. Here’s to a fit 2020!

Consult with your doctor
Never begin an exercise routine without making sure it is safe. Your doctor can help you to determine the frequency, intensity and duration of exercise that’s appropriate for you. Check in with the doctor before making any major changes to your exercise regimen.

 Consider what types of exercise you might enjoy
Do you like water activities? Would you prefer exercising indoors or outdoors? Are you more successful working with a coach or therapist, or on your own? Selecting an exercise program that’s designed especially for you, will help to ensure success.

Buddy up
Many of us are more likely to stick with an exercise routine when we work out with a friend. Find someone who has similar fitness goals and you can encourage each other to keep moving.

Try something new
Too frequently, fears and insecurities prevent us from pursuing our goals. Adaptive sports such as skiing, basketball, skateboarding, horseback riding, biking and many more make it possible for people with mobility limitations to do things that they never dreamed possible. Visit disabledsportsusa.org to learn more.

Use fitness videos and audios
Many of us prefer to exercise in the privacy of our own homes. If that’s your preference, you can find many videos especially for wheelchair users on YouTube. Check out videos from KimNonStop or Lucy Wyndham-Read’s YouTube channels for some examples. For blind individuals, Eyes-Free Fitness offers exercise programs with non-visual cues and descriptions.

Take the Evolve 21 Challenge
The “first inclusive exercise app for people of all abilities,” the Evolve 21 Challenge (formerly known as the CPF Challenge) not only offers daily 7-minute routines of cardio, yoga and meditation, it’s also a fundraiser for the Cerebral Palsy Foundation!

Don’t quit!
Sticking with an exercise routine is tough for everyone. Chances are, they’ll be times when you just don’t have the motivation or will-power to work out. But staying fit isn’t about perfection. Rather it’s a lifelong process that leads to good health and well-being. If you fall off the exercise wagon, don’t give up! Get back on track as soon as you can!

We at Enabling Devices wish you and yours a very Happy New Year!