ALS Awareness Month, observed every May, brings attention to individuals living with Amyotrophic Lateral Sclerosis (ALS), aka Lou Gehrig’s disease, and their families.
According to the CDC, “ALS is a disease that affects the nerve cells in both the upper and lower parts of the body. This disease causes the nerve cells to stop working and die. The nerves lose the ability to trigger specific muscles, which causes the muscles to become weak and leads to paralysis.”
Early symptoms of ALS may include muscle twitching, weakness in the limbs, or speech problems, according to the Mayo Clinic. As the disease progresses, individuals often require assistive technologies for communication and mobility. Despite the severity of ALS, many people continue to lead meaningful, engaged lives with the support of caregivers, adaptive devices, and medical professionals.
Awareness of ALS increased dramatically in 2014 with the viral Ice Bucket Challenge, which raised millions of dollars for research. Since then, scientists have made important strides in understanding the genetic and biological factors that contribute to the disease but there is still no cure, and treatment options remain limited.
During ALS Awareness Month, we can take the time to educate ourselves and others about ALS. We can also support research efforts and advocate for the development of new treatments. Donating to reputable organizations, such as the ALS Association, Team Gleason and the ALS Therapy Development Institute, participating in fundraising events, or sharing facts about ALS on social media are all worthwhile ways to contribute. We can also support policies that improve access to healthcare, assistive technology, and disability services that can significantly enhance quality of life for people living with ALS.
Caregivers are too often an overlooked part of the ALS community. As the disease progresses, individuals typically require high levels of care that is frequently provided by family members. This can be physically, emotionally, and financially grueling. Raising awareness about ALS includes recognizing and supporting caregivers, and helping them to have access to resources, respite care, and emotional support.
There are also ways to make everyday environments more inclusive for people living with ALS. Ensuring accessibility, being patient when communicating with someone who has ALS, and recognizing the importance of assistive devices can make a meaningful difference. It is also critical to listen to and amplify the voices of those affected by ALS.
Enabling Devices makes many products that can enrich the lives of people with ALS. Check out our online catalog to find items that may support your friend or loved one with ALS.
